镰状细胞病护理| UCLA健康中心-皇冠hga025

为什么选择UCLA健康中心治疗镰状细胞病?

The 皇冠hga025大学洛杉矶分校健康 Sickle Cell Disease Program is the only dedicated, subspecialized program for patients with sickle cell disease in Los Angeles County. Our team of highly trained subspecialists focuses on inherited blood diseases. 我们解决镰状细胞病患者的独特需求, a blood disorder that causes wide-ranging symptoms and health complications. This dedicated-care model significantly reduces the risk of hospitalization and complications for patients with this complex condition.

我们课程的亮点包括:

以团队为基础，专业化治疗: 我们的镰状细胞病治疗团队包括初级护理 providers (PCPs) with specific training in sickle cell disease in children and adults, 血液学家, 疼痛管理专家, 神经学家, 骨科专家, 传染病专家输血医学专家位肺脏, 心脏病专家, 肾脏科医师, 眼科医生牙医、心理学家、物理治疗师等等. 这种多专业的模式使我们能够提供及时的, coordinated treatment for all the unique needs or possible complications of sickle cell disease.

获得临床试验治疗的途径是 对发现和研究至关重要. Clinical trials provide patients with improved treatment options that can impact patient outcomes.

协调护理: Through our program, you have easy access to a sickle cell disease-trained PCP. An expert hematologist attends your annual checkup to provide consultation and ask further questions about your health history and treatment. PCPs may also make referrals to additional specialists or integrative medicine providers as needed. Our coordinated approach helps ensure you receive the ongoing care you need without visiting the hospital or emergency department for pain or other complications.

专业社工: Navigating medical care for a chronic disease can be complex, but we make sure you’re not alone. Our dedicated medical social workers can help you connect to support groups, 寻找交通工具或满足住房或食物需求. They can also help you coordinate your medical appointments or transition from pediatric to adult care.

什么是镰状细胞病?

Sickle cell disease is an inherited blood disorder that causes stiff, 月牙形的红细胞相互粘附. 通常，红细胞光滑，呈圆盘状.

The average lifespan of a healthy red blood cell is three months. While sickle cells can live for several weeks, they are fragile and can break down. This leads to a chronic shortage of red blood cells (anemia), also known as sickle cell anemia. Sickle cell anemia may cause fatigue, dizziness or shortness of breath. People with sickle cell disease also have an increased risk of infections, 肺部问题, 视力丧失和中风.

Sickle cell disease is characterized by episodes of severe pain. The sickle cell shape of red blood cells can block small blood vessels, leading to pain so intense it prompts visits to the emergency room. 许多人会感到四肢、胸部或背部疼痛. 持续治疗, 然而, many people have fewer pain episodes and a lower risk of complications.

我们提供镰状细胞病治疗

Sickle cell disease management typically focuses on reducing symptoms and lowering your risk of complications. 您的个性化治疗计划可能包括:

生活方式的改变: 一些生活方式的改变可以帮助控制疼痛发作. Your provider may recommend you drink plenty of water and avoid extreme temperature changes, 高海拔或低氧环境.

药物: Your provider may prescribe oral or intravenous (IV) medications to reduce the frequency of pain episodes, 增加血液流动, lower your risk of anemia or relieve pain during severe flare-ups.

感染预防: It’s important to stay up to date on all your vaccinations to lower your risk of infection. Your provider may also recommend taking penicillin regularly if you have a history of pneumonia or have had your spleen removed.

输血: 你通过静脉注射获得健康的红细胞. This treatment can help reduce sickle cell disease symptoms and lower your risk of complications such as stroke.

铁螯合疗法: People who receive regular blood transfusions have a higher risk of iron overload, 当你体内含铁过多时就会出现这种情况. Your provider may prescribe iron chelators, drugs that treat iron overload.

干细胞移植: This procedure replaces diseased bone marrow with healthy bone marrow from a donor. 干细胞移植s show promise as a cure for sickle cell anemia.

临床试验治疗: Patients at 皇冠hga025大学洛杉矶分校健康 may have access to promising new therapies through clinical trials. You may ask your provider if you qualify for a clinical trial to treat sickle cell disease.

认识我们的团队

我们的团队由训练有素的医生组成, 护士, social workers and administrators with special training and expertise in management of sickle cell disease. Our physicians are active researchers as well as clinical providers who continually bring you the most up-to-date therapies.